When Alzheimer’s disease becomes part of a marriage, or a family, caregivers can usually find resources to support the member facing memory loss or to support the family caregiver seeking peer connections and information. Yet, until the last few years, there wasn’t much designed to support the evolving spousal or parent/child relationship itself. All that changed with the advent of the “Memory Café” concept in the Netherlands, a unique model of social programming designed as a welcoming place for caregivers and their loved ones with memory loss to relax together in a stigma-free environment that offers both socialization and support.
Hebrew Rehabilitation Center’s Adult Day Health Program, Great Days for Seniors serves a diverse group of older adults with a wide range of needs both medical and social. Together, the seniors make up an engaged community supported by an exceptional staff and funding from BNY Mellon as well as Hinda and Arthur Marcus. Hear what their family members have to say about Great Days for Seniors.
Taking care of a family member with Alzheimer’s disease and/or a related dementia can be as exhausting as it is meaningful. Both physically and emotionally, caregiving takes a toll that we can all appreciate. Occasional breaks – whether for a few hours, a day, or a week or more – are important in order to recharge. Family caregivers need rest and support in order to continue to provide the best possible care to loved ones.
There are many supports available for family caregivers:
This blog is part of a year-long series aimed at addressing some of the most frequently asked questions we hear from family and adult children on the topics most concerning them regarding their aging parents or loved one. In 2012 Hebrew SeniorLife published the eBook "You & Your Aging Parent: A Family Approach to Lifelong Health, Wellness & Care," a compilation of answers from HSL geriatric experts in response to the many of the most frequently asked questions. We're reposting some of the most popular Q&A posts from our original eBook which was downloaded over 2,000 times. We're also adding new Q&As throughout the series that address topics not originally included in our eBook.
Adults with dementia often feel compelled to walk about. This behavior has routinely been called “wandering” by clinicians, researchers and informal caregivers. About 60 percent of adults with dementia will experience wandering, which most commonly occurs in the middle or later stages of dementia. Wandering can be prompted by a desire to look for something or someone, such as a family member or friend, or by a need to fulfill a former obligation such as going to work. Some adults with dementia express a desire to “go home” even if they are living comfortably in their own homes.
Alzheimer’s disease, a form of dementia, is a chronic brain disease characterized by the progressive deterioration of memory, language, visual perception and activities of daily living.
If you have a loved one with memory problems, it’s important to see a clinician who has expertise in Alzheimer’s to receive a proper diagnosis and treatment plan. That may be the patient’s primary care physician, or the PCP may refer you to a specialist. Neurologists and geriatricians are two types of specialists who diagnose and treat Alzheimer’s disease.
It seems that there has been an explosion of books, websites, and blogs related to Alzheimer’s disease. While getting as much information out there as possible seems a good idea, the question remains, what is worth reading? And how do you know if the information is legitimate. As always, consider the source. In general, government-sponsored websites end in “.gov” and nationally recognized organizations that end in “.org” are often your best bets for timely, accurate information. As for blogs, it is important to take any advice with a grain of salt, so to speak. Nonetheless, some blogs provide useful, practical information and useful for starting discussions online, which is great for caregivers who are at home.
At Hebrew SeniorLife, all of our direct care staff are trained in the “habilitation therapeutic method” when caring for clients with Alzheimer’s disease and related dementias. Habilitation was developed in 1996 by Paul Raia and Joanne Koenig-Coste of the Massachusetts Chapter of the Alzheimer’s Association and has been successfully implemented in a variety of care settings nation-wide.
There are many myths surrounding dementia that can obscure our understanding of the issues facing our loved ones who suffer from dementia diseases, such as Alzheimer’s Disease. Here are a few to ponder…
MYTH #1 Dementia is a normal occurrence in aging.
FACT:Dementia is a degenerative brain disease that mainly affects older adults, and is not a normal part of aging. If it were true, then everyone over the age of 65 would have it! Many adults advance into their 80s and 90s without much memory decline.
MYTH #2 Alzheimer’s disease is a type of dementia that is inherited.