Taking care of a family member with Alzheimer’s disease and/or a related dementia can be as exhausting as it is meaningful. Both physically and emotionally, caregiving takes a toll that we can all appreciate. Occasional breaks – whether for a few hours, a day, or a week or more – are important in order to recharge. Family caregivers need rest and support in order to continue to provide the best possible care to loved ones.
There are many supports available for family caregivers:
This blog is part of a year-long series aimed at addressing some of the most frequently asked questions we hear from family and adult children on the topics most concerning them regarding their aging parents or loved one. In 2012 Hebrew SeniorLife published the eBook "You & Your Aging Parent: A Family Approach to Lifelong Health, Wellness & Care," a compilation of answers from HSL geriatric experts in response to the many of the most frequently asked questions. We're reposting some of the most popular Q&A posts from our original eBook which was downloaded over 2,000 times.
Adults with dementia often feel compelled to walk about. This behavior has routinely been called “wandering” by clinicians, researchers and informal caregivers. About 60 percent of adults with dementia will experience wandering, which most commonly occurs in the middle or later stages of dementia. Wandering can be prompted by a desire to look for something or someone, such as a family member or friend, or by a need to fulfill a former obligation such as going to work.
Alzheimer’s disease, a form of dementia, is a chronic brain disease characterized by the progressive deterioration of memory, language, visual perception and activities of daily living.
If you have a loved one with memory problems, it’s important to see a clinician who has expertise in Alzheimer’s to receive a proper diagnosis and treatment plan. That may be the patient’s primary care physician, or the PCP may refer you to a specialist. Neurologists and geriatricians are two types of specialists who diagnose and treat Alzheimer’s disease.
It seems that there has been an explosion of books, websites, and blogs related to Alzheimer’s disease. While getting as much information out there as possible seems a good idea, the question remains, what is worth reading? And how do you know if the information is legitimate. As always, consider the source. In general, government-sponsored websites end in “.gov” and nationally recognized organizations that end in “.org” are often your best bets for timely, accurate information. As for blogs, it is important to take any advice with a grain of salt, so to speak.
At Hebrew SeniorLife, all of our direct care staff are trained in the “habilitation therapeutic method” when caring for clients with Alzheimer’s disease and related dementias. Habilitation was developed in 1996 by Paul Raia and Joanne Koenig-Coste of the Massachusetts Chapter of the Alzheimer’s Association and has been successfully implemented in a variety of care settings nation-wide.
There are many myths surrounding dementia that can obscure our understanding of the issues facing our loved ones who suffer from dementia diseases, such as Alzheimer’s Disease. Here are a few to ponder…
My dad was diagnosed with Alzheimer’s disease about five years ago and while there have been many “unfunny” moments (like the day he decided to go for a walk to Foxboro Center at 4 o’clock in the morning in the middle of November). I have found that the use of laughter and humor not only helps me to keep my sanity, but it also seems to help him.
Behavioral changes can be one of the most difficult aspects of caring for someone with dementia. Up to 90% of people with dementia exhibit some form of upsetting behavior over the course of their illness. Examples of these dementia behaviors, known collectively as Behavioral and Psychological Symptoms of Dementia (BPSD), include:
Dementia is one of the most feared health conditions, especially in older adults. Adults with early signs of dementia and their families are often reluctant to seek advice. In fact, more than half of adults with dementia go undiagnosed.