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Living with Dementia: Where to turn for information and resources

Dementia resources and information

It seems that there has been an explosion of books, websites, and blogs related to Alzheimer’s disease. While getting as much information out there as possible seems a good idea, the question remains, what is worth reading? And how do you know if the information is legitimate. As always, consider the source. In general, government-sponsored websites end in “.gov” and nationally recognized organizations that end in “.org” are often your best bets for timely, accurate information. As for blogs, it is important to take any advice with a grain of salt, so to speak. Nonetheless, some blogs provide useful, practical information and useful for starting discussions online, which is great for caregivers who are at home.

Here a few of my suggestions for Alzheimer’s resources on the web:

Alzheimer's Association

If you tap only one resource in your search for guidance, the Alzheimer’s Association should be it. Alz.org delivers just about every bit of information you need. This site is packed with caregiver notes, information on warning signs, clinical trial links, and medical news. It also offers message boards, a great blog, and links to state affiliate support groups.

Alzheimer's Disease Education and Referral Center (ADEAR)

This newly updated government-sponsored site includes timely, accurate information on Alzheimer's disease from the National Institute on Aging. Includes fact sheets, textbook chapters, journal articles, brochures, directories, videos and other media, bibliographies, program descriptions, monographs, newsletters, and reports that are available to the public. Also includes info on clinical trials and research centers. Resources are available in English and Spanish. 

Met Life Foundation

It is less known that the MetLife Foundation has supported Alzheimer's disease research and outreach activities for more than 20 years. They published a free, very interesting document in 2011, What America Thinks: MetLife Foundation’s Alzheimer's Survey. The document is available online, and worth reading.

Alzheimer’s Front Row

This site contains a pretty decent blog. The posts are interactive, allowing visitors to leave comments. This site also contains a good informational page. As with all blogs, readers should verify the source of any and all information posted, especially if medical in nature.

Caregiving with Purpose

This blog has a unique feature—a Caregiver’s Heart Wheel—which helps caregivers in each stage of their journey.

14 Best Alzheimer's Videos of 2012

Healthline.com has a collection of fourteen educational videos produced by agencies, film and television companies, corporations, authors and individuals that can be viewed online. These brief videos tell the stories of persons with Alzheimer's, their families, and the disease itself. The list includes a short YouTube video describing The Alzheimer’s Buddy Program, a joint program between Harvard University and Hebrew SeniorLife.

Memory Care at Assisted Living at NewBridge on the Charles 

NewBridge on the Charles offers the Gilda and Alfred A. Slifka Memory Care Assisted Living Residences to seniors with early stage and mid-stage Alzheimer's Disease and/or a related dementia. The Memory Care Assisted Living Residences at NewBridge on the Charles provides a personalized and meaningful assisted living experience for residents based on the history, preferences and goals of each individual. Short-term stays now available. 

Learn more about Memory Care at NewBridge

Make an appointment for Memory Disorders Testing

Elaine Abrams, MPH, RN, CHES's picture

About the Blogger

Program Manager, Alzheimer’s & Dementia Care at Hebrew Senior Life until June 2015

Elaine Abrams, MPH, RN, CHES, joined HSL in December 2013 bringing with her more than 25 years of nursing, public health, and health education experience. Her areas of expertise include community health assessment, program development and management, and health communications.  A graduate of University of Connecticut Graduate Program in Public Health, Elaine has held several leadership roles including President-elect at the Connecticut Public Health Association, the state affiliate of the American Public Health Association, where she also served for several years on the Board of Directors...

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