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Caregiver Support for Dementia Patients

Helping Families Bond with Caregivers in Our Memory Support Households
Caregiver Support for Dementia Patients

This blog is part of a year-long series aimed at addressing some of the most frequently asked questions we hear from family and adult children on the topics most concerning them regarding their aging parents or loved one. In 2012 Hebrew SeniorLife published the eBook "You & Your Aging Parent: A Family Approach to Lifelong Health, Wellness & Care," a compilation of answers from HSL geriatric experts in response to the many of the most frequently asked questions. We're reposting some of the most popular Q&A posts from our original eBook which was downloaded over 2,000 times. We're also adding new Q&As throughout the series that address topics not originally included in our eBook. Sign up to receive the blog series and download our original eBook at www.hslindependentliving.org

As a Social Worker and Operations Leader in the Memory Support Neighborhood at Hebrew Rehabilitation Center at NewBridge on the Charles, I am privileged to work with a care team that is committed to helping our residents and their families negotiate a very special, but often challenging stage in their lives.

I have found that there is nothing more important to our residents’ quality of lives than the special bond that develops between their families with other resident families and our senior caregivers. Just as we want our residents to feel safe and at home with us, we also want their families to feel welcomed as part of our extended family. Life in our neighborhood should feel just as natural and inviting as it did at any other point in their lives.

Mealtime represents a great opportunity for our resident assistants to collaborate with families to create a warm and communal experience for everyone. As dementia advances, meals and dining become a challenge for both residents and their caregivers.  Residents become less able to feed themselves, often forgetting how to use utensils, or confused about what utensil to use when.  Staff must know when to cue and encourage residents to self-feed or when to start assisting them. It requires finding the right balance between promoting autonomy and ensuring the resident is getting proper nutrition.  This is where families can help.

On one of our households we have many husbands or wives who come to assist their spouses at mealtime. They help make dining more social, fun, and lively for the entire household.  Their involvement also serves as an informal support group for other spouses who have not found traditional support groups helpful. 

Music is played and old stories are shared, and the staff gets to see the family members and their loved-ones in a new light.  Visiting families “adopt” other residents, and include them in their stories, encourage them to eat, and provide hugs or smiles on days that may not be going so great.  Not only do visitors help their own spouses, but they enjoy a sense of being able to make dining, which can be difficult, go more smoothly, helping keep the experience normalized and social.  Residents tend to eat better, try harder to feed themselves, and become more animated during this time.

Understandably as those we love decline it can feel like a time of great loss. On our memory support households we demonstrate that caring for these special residents can still be a time for building new relationships and experiencing rewarding interaction with members of their loved-ones’ new community.

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Nancy Reed, MSW's picture

About the Blogger

Operations Leader for the Memory Support Program at Hebrew Rehabilitation Center at NewBridge on the Charles

Nancy Reed joined HRC in 2009 and served on the management team that opened HRC at NewBridge.  In this role, she oversees the model of care for older adults with cognitive impairments, and is responsible for staff coaching and education, staff supervision, project management, and the development of family partnerships that help create a sense of community.

Before joining HRC, Nancy was Corporate Director of Dementia Services at SunBridge Healthcare in Boston.  During her career, she has held a number of executive positions in organizations providing services to seniors in assisted...

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